Health

    Great service from Awanui

    I have to give a shout-out to Awanui Laboratories collection staff in Porirua for their service today.

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    No emergency alarms at medical ward today

    CW: medical treatment.

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    A new pain?

    I woke up early two days ago with a very sore shoulder. A newish pain. What could that be? (CW: medical talk)

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    Regarding the news from Auckland today about the City Council considering when stores can sell alcohol.

    I reckon anyone who wants to buy alcohol at 11pm has probably been on the sauce for a while and doesn’t need any more!

    A new notebook

    I’ve just created a new section in my bullet journal for September. It’s the last one I have any room for in the notebook. Given my prognosis at the end of last year, I didn’t think I would be doing this. But, things have changed, and I have even had the confidence to buy a new notebook for October and onwards.

    It’s not exactly one of my highest priorities regarding my health, but I will be interested to see how much of the new notebook I get time to use!

    Your immune system is not a muscle

    A fascinating description of the incredible complexity of our immune system. Not too technical for a non-clinical person to understand.

    Rachel Thomas, PHD - Your immune system is not a muscle

    More medical adventures (not me this time)

    Our daughter had to spend last night in ED.

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    Accessibility on devices for poor eyesight

    About 10 days ago I blogged on my new-found appreciation for the accessibility settings in various devices to help me read on screen when my eyesight is poor. Original post: Blurred vision giving me a new appreciation of web accessibility.

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    Gratitude

    Lying in bed thinking of some of the things I can be grateful for:

    • I have a wonderful wife who loves me and looks after me 💕💚
    • Old friends and family visited yesterday for afternoon tea and a fish and chip dinner 💕
    • Children stayed for a wide ranging discussion that included ‘How long could you survive by yourself on a desert island?’, to son talking about IT qualifications he’s doing for his post-construction job
    • More old friends coming to a 1970s themed dinner tonight — salmon mousse and cheese fondue
    • New line of cancer treatment might be showing signs of positive response (early days but fingers crossed 🤞😷
    • Dedicated Dharma teachers who guide me on a spiritual path that is meaningful to me🙏🕉️
    • Inspiring people on social media and in real life communities who are trying to make the world a better place — it doesn’t always feel like it, but there are a lot of us
    • Knowing that most people are essentially good and want the best for everyone

    Kate’s off on her second run in as many days, after a very long time not doing much exercise. Very proud of her getting back into it. She enjoys it and feels much better being fit.

    Good for her!

    Another day in the hospital day ward

    Another day in the Kenepuru day ward for a blood top up. Keeps me out of mischief, I suppose.

    CW: Adverse reaction to medicine

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    Today’s drugs

    CW: cancer and drugs

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    Porn movie character name

    A former boss was diagnosed with prostate cancer a few months ago and had surgery early this year. On a couple of occasions he has mentioned that one of the risks with this surgery is a reduction in sexual function (this appears to bother him).

    Today he told me he is recovering OK and is encouraged by the fact that his surgeon’s name is Rod Stud!

    I thought he was joking. He wasn’t. (Although the surgeon’s surname is actually Studd, which isn’t quite as funny.)

    New cancer treatment underway already

    CW: Cancer treatment.

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    Hope can be a dangerous thing when it comes to our health

    When you’re face-to-face with serious illness or death, hope in an unattainable cure or treatment can be very emotionally damaging.

    I mentioned in a blog post a couple of weeks ago that I was being considered for a newly-funded drug to have another crack at my myeloma. It’s now become available and I am into my first round of 21 days on pomalidomide (tradename Pomilide). I’ve only taken 2 capsules so far, which isn’t long enough for any side effects to show up.

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    Keeping the health system busy

    Our family is persisting in making sure the health system is keeping busy. I had to get one of my regular blood tests today, and when we got home, we discovered our daughter, who lives next door, had been referred to the main hospital ED today by her GP for them to check out a bleeding stomach ulcer. Probably caused by taking anti-inflammatories for her endometriosis. So my wife had to drive her into town, muttering, “I’m truly sick of that place.” Good result, though. The daughter has been admitted overnight and will be seen by the gastrointestinal team tomorrow.

    Also, one of our nieces fell off her bike this morning and needed the paramedics to clean up a nasty graze and bruise on her knee. She also has two chipped teeth – harder (and more expensive) to fix than a scrape and bruise! Very grateful she was wearing her helmet.

    Faith in dealing with illness

    When my haematologist told me in November last year that, after 13 years of treatment, they had run out of publicly-funded options for treating my myeloma and I had, as a worst-case scenario, a few weeks left to live, it was a bit of a shock. “You could be dead by Christmas,” were his exact words. And yet, here we are, officially in the second half of the new year, and I’m still hanging around—a bit slower and shorter than before—but above ground!

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