Myeloma
- I have a wonderful wife who loves me and looks after me 💕💚
- Old friends and family visited yesterday for afternoon tea and a fish and chip dinner 💕
- Children stayed for a wide ranging discussion that included ‘How long could you survive by yourself on a desert island?’, to son talking about IT qualifications he’s doing for his post-construction job
- More old friends coming to a 1970s themed dinner tonight — salmon mousse and cheese fondue
- New line of cancer treatment might be showing signs of positive response (early days but fingers crossed 🤞😷
- Dedicated Dharma teachers who guide me on a spiritual path that is meaningful to me🙏🕉️
- Inspiring people on social media and in real life communities who are trying to make the world a better place — it doesn’t always feel like it, but there are a lot of us
- Knowing that most people are essentially good and want the best for everyone
Things they don't tell about cancer
A new notebook
I’ve just created a new section in my bullet journal for September. It’s the last one I have any room for in the notebook. Given my prognosis at the end of last year, I didn’t think I would be doing this. But, things have changed, and I have even had the confidence to buy a new notebook for October and onwards.
It’s not exactly one of my highest priorities regarding my health, but I will be interested to see how much of the new notebook I get time to use!
Gratitude
Lying in bed thinking of some of the things I can be grateful for:
Thank heavens for morphine. (That’s all I have to say.)
Another day in the hospital day ward
Another day in the Kenepuru day ward for a blood top up. Keeps me out of mischief, I suppose.
CW: Adverse reaction to medicine
Blurred vision giving me a new appreciation of web accessibility
Hope can be a dangerous thing when it comes to our health
When you’re face-to-face with serious illness or death, hope in an unattainable cure or treatment can be very emotionally damaging.
I mentioned in a blog post a couple of weeks ago that I was being considered for a newly-funded drug to have another crack at my myeloma. It’s now become available and I am into my first round of 21 days on pomalidomide (tradename Pomilide). I’ve only taken 2 capsules so far, which isn’t long enough for any side effects to show up.